well, ok... so its kinda the end of the week almost.. but it has been one HECK of a week.
So. My husbands name is Glen. He has Chrones disease and Colitis. Both are destructive bowel diseases, which would probably eventually lead to him having several operations, which remove chunks of the bowel, which are the most diseased and the most "unuseful", ie unusable!!
Eventually leaving no small or large intestine, and a lovely bag on the outside.
Sooo... about 5 yrs ago we hear about this revolutionary doctor, who is undertaking great new research on gastro intestinal diseases, and who could "technically" "cure" these diseases...
Glen of course started seeing Dr Borody, and has had fantastic results, (albeit VERY expensive ones, which have left us with NO money or savings... but all worth it in the long run if it worked) we have been leading a "normal" life, which was previously not one of our relationship strong points, as Glen would often lose control of his bowel motions and we would have to rush home, leading to less and less outings...
Anyway, the short story is that the eventual outcome was a "procedure" that was to take place over 2 weeks, which would cure the diseases...
So here we are, five yrs later at the "procedure"...
with an 85% chance of success, costing us $3000 out of pocket in one hit, and alot of stress and heartache if it doesnt work...
Glen is on the last 2 days of the procedure today.
He has been VERY VERY ill... back to unable to go anywhere, and taking a change of clothing to his daily hospital visits for his daily rectal exam, and internal exam, and having things STUFFED into his body, very painfully from the anus EVERY DAY for the last 12 days....
This morning he started bleeding... BADLY bleeding....
I am taking tomorrow off to stay with him, and I am NOT optomistic of the results... and am feeling like I am going to have a nervous breakdown.
We have put off having children for the last 5 yrs, due to the fact that the drugs he was on rendered him sterile....
and it may have all been for nothing...
All that time and money... and we could be looking at the same thing we were looking at five yrs ago...
I tell you...
I am feeling VERY down, and it is becoming glaringly obvious that this could have been for nothing.
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